Just wondering, especially if you live in the UK, are you an unpaid carer? Please do share your experiences.
I have been a carer on and off to some degree since my teens. All this has been unpaid, as a carer. I have just automatically done it. Neither of us have asked for help.
But since my mum took that overdose just three weeks ago, yesterday, I have upped the care I give and as you know, the plan is to get mum to live with me in a council flat. So the council list I am on, has been updated accordingly and I had a form to fill in regarding my my mum’s needs, as you know. So after the council have dealt with the form accordingly, means the banding will get changed accordingly. Hopefully for the better.
I have looked into being paid as a carer, through advice of family members. But I am entitled to nothing, because mum’s DLA is low mobility. Mum needs to be on medium to high care on DLA to get this. No way will I expect mum to go through the hell’s of PIP, just for me to get carer allowance. So as I have said to my family that advised me to apply for carers allowance, I can’t get it, stating the reasons why, but nevertheless, I will manage. We will manage.
I know just by me and mum living together, I won’t struggle as I do now. If anytime social workers, or whoever responsible in mum’s care says for mum to apply for PIP, I will say mum is fine what she has. Mum is better being on DLA on little she has then lose it altogether because of the shambling with PIP where a person will just say mum is fine and then she lose what she had. I have not forgotten the stress of it and how it made me feel, when I applied. (I was on DLA for life originally, but had to apply for PIP, because I was in the criteria affected in the change of DLA to PIP.) I won’t put my mum through that. My mum would not cope with that process and, the effects it would cause from that don’t affect social workers and decision makers at the end of the day. They get to go home and play happy families. But it affects my mum and me, because I would get the brunt of seeing my mum’s aggitation and whatever else, as well as how my mum will be feeling and the unknowns of what is whirling around in her head. My priority is keeping mum safe and knowing she is well, while being independent as possible.
Share your views as an unpaid carer.